Friday 15 July 2011

About those 4kg....

It seems that putting on 4kg in 4 days is not merely a question of eating all the pies. I did think it was a pretty good effort, even with all the free Margaritas and endless croissants - but it turns out to be a first hint that all is not entirely well with my liver.

When I go in for my pre-chemo blood tests this week, the results confirm that my liver is being affected slightly by the chemo - and that more tests are needed to rule out liver damage, tumours, hepatitis and auto-immune diseases before I can go ahead with the next cycle.

I take this badly. The idea that another, previously healthy, part of me is potentially now damaged is horrible, as well as the delay to the chemo (I just want it all to be over). And of course the underlying terror that they will find tumours in the liver, which would be very bad news indeed. So I am perfectly foul to J who is doing his best to be both cheerful and rational while we wait for more blood tests and an ultrasound to be done.

They also decide that I need to have my womb, ovaries etc scanned at the same time. Papa Smurf asks me when I last saw a gynae and her horrified reaction to my response of "I never have......" says it all. It's hard to explain that, in the UK, that question is a bit like asking when you last saw a brain surgeon - if you've never had a problem, you never see a specialist.......

So I have the scan (involving probes you don't want to know about) and at the end the scanner lady leaves me on the table, still covered in jelly, for 15 mins - to "go and talk to the Doctor"...... This is where I hate the Singaporean way - there is no allowance for the fact that you might draw some conclusion from the fact that your scanner lady has suddenly rushed out unexpectedly, there is no effort to explain what is happening, you are just left wondering. When she comes back I pounce on her - well not literally, as I am still covered in jelly and that would be messy - and make her tell me if there is anything in the scan that she's seen. Her response of "Nothing so special" is only marginally reassuring, but even I can tell it's the most I'm going to get out of her.

We are then told to go home and wait for the results, which will come in a few days. Of course, being me, this is the cue for much Internet searching - and for once the information is reassuring - mild liver damage is a very common side effect of chemo, and fixes itself once chemo ends.

Thankfully, the results come back quickly as being all clear on all counts - so I will be allowed to continue with chemo, under close supervision by a Hepatologist (Liver Man).

The next day, we meet with the liver man who gives me some pills made out of bear bile (yes, you read that right - although I'm hoping this is now synthetically produced) and milk thistle. He also gives me the worst news yet - not a drop of alcohol during treatment from now on. This is bad news indeed.

Then off to the Den for this weeks cocktail - a reduced mixture this time as Papa Smurf wants to minimise the chemicals until the liver issues are stabilised. She is hoping that this will have happened by next week and we will be able to go back to the full whammy then.

Nothing is straightforward, it seems.

As zen-like and serene as ever, J xx

2 comments:

  1. Great to hear that Singaporean bedside manner is as cracking as the NHS. No booze? Now that's something they would never try in this country... Keep up with the blog, best read of the summer. Pic of Papa Smurf would help- I have strange images in my mind! Much love from soggy hants, Ben and Lucy XXX

    ReplyDelete
  2. I know, it's a hideous infringement on my human rights. Something must be done. J is lapping it up - no need for taxis with a permanent driver around..... There is going to be SUCH a long payback period, which I never cashed in on when pregnant - this time round I am soooooo not going to forget.......

    I am WAY too frightened of Papa Smurf to take a photo!

    xxxxx

    ReplyDelete